One more thing

When I had Weilong at the Dr's office yesterday afternoon they said he is now 47 inches tall and weighs 46.8 lbs!! He's growing and I love it. Still very thin, but he now weighs more than he did pre-surgery. He eats well and is active.

Newest MRI Images

Weilong had his 6 month follow up MRI and visit with the surgeon. The Syrinx is still there, but has shrunk a little bit. The surgeon was a bit disappointed. He says there is some malformation at the front of the spinal column that is probably causing csf flow restriction and suggested that we might want to think about surgery. I'm afraid I just said "NO".

Weilong is doing fine, his headaches have all but disappeared, and we will not put him through another surgery at this time. Only if he starts having serious neurological symptoms or they tell us the condition is life threatening. I believe that they nasty old syrinx will shrink even more over the next few months. Remember how much swelling Weilong had in his little brain for such a long time? Well, I think that slowed down the shrinking, but now that he is so much better it will shrink like it's supposed to and even disappear.

Here are a couple of pictures from the MRI series. The syrinx did extend down to T1 before surgery, but now it ends around C4 I think. Oh, how I wish I had some kind of medical training.

Latest Medical Update

Great News! I finally took WL to the opthalmologist yesterday. I had been urged to do this by a couple of his other doctors. They were concerned that there was pressure on his optic nerve. But thank God this is not the case. The opthal. said that Weilong has 20/20 vision and the pressure is 100 percent normal. I think I actually laughed laughed with relief in his office. Weilong and I were giving each other the high 5 and saying "Thank you God", the doctor must have thought we were completely insane. Oh, how good it was to get a good report like that.

Then we went to see the endocrinologist and things are going well there also. Weilong is 46 inches tall now. The dr said he has grown 4 inches since we began growth hormone therapy on 12/7. And he weighs exactly 45 lbs. He looks very thin though. But he eats well and is healthy so we're not to worry about that. For now his dose of Genetropin remains unchanged. I am praying for another inch in growth by the year mark which will make 5 inches in one year. Weilong asked the dr if he could have two shots a day so he'd grow faster, but was denied. He said the kids at school are commenting because he is the smallest in his class. I'm afraid this is something he'll just have to deal with for now. I pray that he catch up with the others someday, but if he's always on the small side it's ok. His wonderful personalty goes a long way in winning friends for him. He loves life and loves people and it shows.

A very wonderful friend of mine (well of the whole family) is re-doing my floors. We have had an exciting week pulling up all the carpet. Now we are on bare concrete and almost all the furniture is in storage. She has started putting the base coat of skimstone on the floors. It's very exciting. And the sample part looks so wonderful. It will be so much easier to keep clean than carpet. And so much better on Julia's allergies and asthma. I can't wail til it's finished. I'll post pictures.

Weilong loves his teacher. He looks forward to school every day and is doing well. He is starting to enjoy reading. He wants to be a teacher when he grows up. He says his dad in China was a teacher.

Weilong has an MRI scheduled for the 23rd of the month. I am now looking forward to another good report. His headaches are so much less frequent. Maybe once a week now. I'm so thankful.