Good News

Weilong is doing fine! Everything went much better than expected, thank God.

The surgeon removed part of the very back of Weilong's skull and part of C1 vertabra. The most wonderful news of all is that they did NOT have to open up his dura. That means much less chance of complications and infections. I had been told several times that because of how large Weilong's syrinx is that it would be necessary to open the dura and put in a patch. The surgeon checked WL's csf flow before surgery and it was virtually zero. But after removing the skull and C1, there was flow. It's not 100 percent, but they think it is enough and will improve as the syrinx shrinks. So they decided not to open the dura!

During the pre op stuff, I had asked about the possibility of leaving the dura intact, and the PA told me that in only 2 cases have they been able to do that. And in Weilong's case they were sure it would not be possible. But thank God they were able to do the much simpler version of the decompression surgery.

Poor little Weilong had a hard night. He threw up a whole lot, countless times. He couldn't even hold down one tiny piece of ice and he was so thirsty.

But his is the absolute strongest, bravest little man I have ever met. Around midnight he slowly, carefully climbed out of bed to urinate. He simply could not do it laying in the bed. It shocked us all. He did this two more times during the night.

He is doing very well and will get to come home tomorrow. He has begged and begged to go home. He says he misses his brothers and sisters, and his own house.

I'm exhausted, but vastly relieved. And I'm amazed at the goodness of God, and the courage and resiliance of my sweet boy.